Lilypie Second Birthday tickers

Lilypie Second Birthday tickers

Saturday, February 27, 2010

Baby Mia the Acrobat

We went into the specialist on Tuesday, February 22nd to find out more about how Mia was doing. The doctor last week was worried because they couldn't see the line across the upper lip on Mia and were worried she might have a cleft lip and or cleft lip and palate. Here are the pictures we got from the specialist. It was so fun to see Mia again and to see how quickly she is growing and changing!

At first the doctor couldn't get a look at her little face because she was turned around and had her hands up in front of her face. That seems to be one of her favorite positions. :) It was snowing that day (yes, I am STILL in Texas) and so they were short staffed. Since Mia wasn't cooperating, the doctor left to finish with another patient while we waited to see if Mia would turn or not. Zeus and I were shaking my stomach trying to get her to move around. :) I also turned to the different sides for a little bit at a time and we took turns rubbing my belly. That must have done it because when the doctor got back in Mia had changed positions. We felt a little bad when we saw her new position because it didn't look at ALL comfortable as you can see below, poor thing!

For those of you who have a hard time seeing anything besides static in an ultrasound, this picture above has Mia's head on the right, her bum on the left, and her feet stretched up over her head! We have decided she must be some kind of acrobat and that she has her momma's flexibility. :) Because of the angle to get her profile, you can't see her little arms in this pic, but they are ALSO stretched up over her head, almost like she's playing with her toes. We now refer to her as Mia the Acrobat.

Here's her little face looking directly forward, head on the right and torso on the left.

Here's Mia's little profile picture. In this picture you can see that her little upper lip isn't defined under the bump of her nose. We found out that our sweet baby girl does indeed have a cleft lip and palate. The term for her kind of clefting is called a bi-lateral cleft lip and palate. This means that she has two clefts, one from each nostril. I think we were a little in shock at first at the news. We knew it was a possibility, but to see the evidence and to hear it specifically diagnosed was hard to hear because we wanted everything to be perfect for our little Mia. It breaks our hearts to think that our sweet little baby girl will have to undergo surgeries and be in any kind of pain, but are grateful that so much is known about these issues and that they know what surgeries to do, when to do them, etc.

The specialist also said that with these babies that have the clefting, there can be other things going on with them to - a lot of what they call mid-line issues with other things along the midline also having problems. They checked her little hands and legs, fingers and toes, heart and brain, head, etc. There can also be something else called Trisomy something that can cause lots and lots of problems too. Everthing looked good so far with Mia and we are SO thankful for that!!! We will still go into the fetal specialist once a month too for full scans to continue to monitor Mia and her growth. It will be fun to get to be able to see her so much, because you usually don't get that many ultrasounds. They will also be doing 3 and 4D ultrasounds so we'll have a pretty good idea of what her sweet little face will look like before she's born, and to find out more about the clefting. There will also be a team of specialists to evaluate her shortly after birth who will be able to do a full evaluation. I asked about feeding issues, and the doctor said that quite often these kiddos are still able to nurse, I guess because of the flexibility of the human breast they are able to get the nipple far enough back in their little mouths so that the milk doesn't go up into their sinuses. She also said that it's about the best thing for them too. We're hoping and praying that Mia will be able too. It will be so good for her, and also make it one less thing we have to be juggling. Cross your fingers for us!

Zeus and I have been reading up on things and looking up pictures online and though it was hard to see in some ways, it was so reassuring to see what great things they can do to fix the clefting. The specialist who let us know that it was indeed a cleft lip and palate was so extremely comforting and sweet. As she was talking to us about things and reassuring us, she would keep putting her hand on my arm and rubbing it or stroking it as she told us everything was going to be okay - that she would still be perfect and beautiful and that it was really such a small thing and it can be so easily fixed. She showed us some pictures of what babies can look like that are born with clefts like Mia's to help prepare us for what our sweet baby girl face may look like when she's born. Such a sweet compassionate lady and I feel grateful to have such great and caring doctors! She said that we would be in her thoughts. I really like her.
We're not sharing this so that any one will feel bad for us or our sweet Mia, but to include those we love on this new journey in our life. Zeus and I are SO excited to be welcoming baby Mia into our family!!! We can hardly wait to meet her and to kiss her little face and snuggle her in our arms! We love her so much already and know that our love for her will only get stronger and stronger! We are so greatful that she is being sent to a family where this news doesn't change in the least the excitement level with which we welcome her to our family, in how much we will love or cherish her or in how she will be treated or cared for.
We love you little Mia Angelina Moreno and can hardly wait for the end of June when we will finally be able to hold you in our arms and snuggle you to pieces!!! :)


  1. It's so amazing what they can see with ultrasounds these days. I'm so grateful for modern medicine and that we live in a time where they will be able to help Mia live a happy and normal life. It has to be reassuring to know that there are so many trained doctors and nurses that will be there to help every step of the way. You guys are in my heart, thoughts, and prayers as well as Mia. I can't wait to meet and hold precious little Mia! I feel so lucky that we live nearby!

  2. She will be her own perfect Darcie! All babies are THEIR own perfect (o: I can't wait to meet her! Keep posting her cute pictures! Ultrasounds are awesome!!

  3. What a beautiful tribute to Mia and to the quality of parents you and Jesus will make! Your comments really touched my heart!

    Love ya,

  4. This WAS, indeed, very touching to read . . . I am sure Heavenly Father felt very safe sending this baby to you and Zeus, where He KNEW His little one would be cherished and precious to both of you . . .

    It is good to know this in advance so that the doctors can be watching and planning what to do when little Mia is born . . . I was wondering about the nursing situation . . . That is fascinating that it is often not a problem.

    Keep us posted, Darcie! (And yeah, I am one of those who mostly can only see static in ultrasound pictures . . . thanks for including the explanations!) ;o)

  5. just left the doctor with my daughter and was told that the lip was not forming right.....she is 19 weeks pregnant......of course she is scared and worried but when i read your story, as a grandma, you have made me feel so much better and with this i thank you from the bottom of my heart. your daughter mia is beautiful. my thoughts and prayers to mia and her parents and the help you give us who are just undergoing such.

  6. Thank you. I remember when we were there and we felt like it was the end of the world. There is a light at the end of the tunnel, though it may seem so very very far away at times. If there is anything I can do for your daughter, please don't hesitate to contact me. Sending hugs your way!!!